DEBRA Australia supports families living with Epidermolysis Bullosa (EB) by providing critical support programmes to ensure family support inclusive of quality of life, respite and research into treatments and ultimately, one day a cure. EB causes the skin to blister and peel at the slightest touch. Bandages and dressing regimes can take up to three hours every day to protect and medicate wounds. There are an estimated 1,000 Australians living with this rare genetic condition that is the worst disease you have never heard of.
Find out more www.debra.org.au.